I never expected any of the things that have happened to me and my
family. I honestly feel like a passenger on the craziest roller coaster
EVER! Sometimes its fun, often times its scary and it usually gives you
an adrenaline rush!
No one expects to become the parent of
special needs kiddos and NO ONE expects to outlive their children. Both
of these things are true for us.
After almost 18 years of special needs being such a major part of our lives, all the drama has died off and it just becomes second nature. It is "normal" in our house to hear coughing/gagging, followed by the hum of the suction machine. It is "normal" to have lips turn blue, while oxygen saturation drop just because a little person is being lazy that day. If we haven't seen at least 3 seizures before breakfast, then its been a "weird" day. I've learned that "NORMAL" is a relative word.
The title of this page
is indicative of what happens to you when these things are part of your
life. Every parent of a special needs kid hears this statement when
meeting new people... "I admire you so much, I could never do that!"
Its my answer to everyone who has ever said this to another person.
Yes, you could. It is your kid, just like all your other kids. You love
them no more or less, they just come IN A DIFFERENT PACKAGE!
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